“ERT home infusions: Everything you need to know”
This article describes how ERT, or Enzyme replacement therapy, is currently the only available type of approved Pompe disease treatment that addresses the condition’s underlying cause. The NICA Infusion Locator tool is cited as a database of infusion centers in the U.S. and as a patient tool for finding infusion centers based on the specific medications the centers can administer.
Login
When you login, you will be directed to admin.infusioncenter.org. When you get there:
You will receive an email with a link to click that will log you into the resources section of the locator, which includes your claimed and/or activated infusion center(s).
Please note: you will have to enter your email each time as we no longer have passwords for extra security. This login process is separate from the forum.
If you have questions about the email address associated with the location, how to add or claim a center, how to purchase a resource, etc., please email our Member Relations lead, Ashley Kana at [email protected].
