You have just been diagnosed with a complex, chronic disease… now what? It is normal to feel a lot of anxiety and uncertainty with a new diagnosis. With one big answer can come a plethora of questions. We talked to Lupus warrior and inspirational fitness trainer, Sybella Davis, on...
How To Prepare For Your First Infusion
The following post is written by Sumaira Ahmed, matriarch of The Sumaira Foundation, a 501(c)(3) organization dedicated to generating global awareness of neuromyelitis optica spectrum disorder (NMOSD), fundraising to help find a cure, and creating a community of support for patients and their caregivers. I used to be...
Infusions Instead of Back Surgery
Infusions Instead of Back Surgery by Steven Baak, MD My neighbor was walking slowly to his mailbox. I walked over and asked, “What happened to you?” “I’m going in for back surgery on Wednesday. I waited six months to get this scheduled with the best surgeon in the Midwest,”...
Disease Management During COVID-19: From IBS Patient and Advocate, Andrew Donovan
Written by Andrew Donovan Managing life during this COVID-19 pandemic is quite different than it was just a few short weeks ago. Many of us have experienced social isolation, shelter in place, or stay at home orders. Others may have experienced postponement or cancellation of scheduled procedures or appointments...